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US Autism & Asperger Association

December 5, 2013

Welcome to USAAA WeeklyNews, an email newsletter that addresses a range of topics on autism, Asperger Syndrome, PDD, and other related disorders.

Please do not reply to this email as we are not able to respond to messages sent to this address. Contact us at www.usautism.org.


Living with Asperger Syndrome

shore and sarikahan

Tim Page, DFA- "Before I was diagnosed [with Asperger's] at the age of forty-five, I looked on my life as this narrative of a completely confused distraught kid who suddenly got energy in his early twenties and was able to do a number of things. Before my diagnosis, but after winning my Pulitzer Prize, after doing a lot of different books, I decided I was all well and took a job running an orchestra [the St. Louis Symphony]. It was a disaster. I went back to being seven or eight years old. I’d have to deal with a hundred different musicians and be polite to people at Board meetings when they said we should put Bolero on every program because we would have sellouts every night. It was impossible and I just collapsed. I just did such a wretched job. I said I am just terrible at this and you need to leave me alone.

"I'm just going to go with the epigram I used for my book, 'Parallel Play' which has been attributed to Plato and to a lot of other people and seems to come from somebody named Philo of Alexandria, maybe, but whoever said it, the wisdom is good and it's true for neurotypical and autistic alike and that is, 'Be kind, for everyone you meet is fighting a great battle'."
- Tim Page, DFA
, Professor at University of Southern California at both the Thornton School of Music and the Annenberg School for Communication and Journalism

Excerpt from USAAA 2013 World Conference Self-Advocacy Panel, Saturday recording, August 17, 2013 

I went back to the Washington Post and I started to realize that the reason I had done well was that I was accommodating myself to my own needs. It was right then that I got the diagnosis. It explained everything; why I was good at certain things and completely oblivious to others. What I try to do now is not limit myself because of my Asperger's, because I actually think my Asperger’s was responsible for the ‘good things' I have done in my life as well as a whole lot of embarrassing things." (excerpt from the USAAA 2011 World Conference, 03 Panel 2 Discussion: Self Advocacy - Experiences, Perspectives, and Challenges). More...

"I started to realize that the reason I had done well was that I was accommodating myself to my own needs. It was right then that I got the diagnosis. It explained everything; why I was good at certain things and completely oblivious to others ."
- Tim Page, DFA


Charisse Byrd - "Being in a relationship with someone who is also on the spectrum has its serious advantages, but challenges are a normal part of everything. I am very analytical of words being spoken to me and sometimes I will take what she (or anyone) says so literally that it changes the initial route of the conversation. Being very sensitive people, if the conversation gets emotional it is sometimes hard to decipher where we got turned around or miscommunicated because we run on very high emotion, (believe it or not!). When that happens, we usually need to take a step back, have some quiet time to gather our thoughts and words because sometimes they just don't come out right if at all.

"I am very analytical of words being spoken to me and sometimes I will take what she (or anyone) says so literally that it changes the initial route of the conversation."
Charisse Byrd

After the inertia of the emotions slow down a bit we are always able to talk about it, analyze it and come to an understanding. I am happy to say that we have a very wonderful relationship and we are aware that miscommunications do and will happen. We continue to work out the troubleshooting of verbal communication between ourselves with each other's unfailing support. More...


Tim Page and Charisse Byrd have presented at USAAA Annual World Conferences. Click here for video and audio presentations from the USAAA World Conferences.

FULL STORY
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Access to USAAA Newsletter Archive 2005 - 2013


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Probiotic Therapy Alleviates Autism-like Behaviors in Mice

[Editor's note: Probiotics therapy is not new to the autism community as thousands of parents have been using probiotics for their children afflicted by autism for years.]

By Cal Tech News. December 5, 2013

photo gut bacteriaAutism spectrum disorder (ASD) is diagnosed when individuals exhibit characteristic behaviors that include repetitive actions, decreased social interactions, and impaired communication. Curiously, many individuals with ASD also suffer from gastrointestinal (GI) issues, such as abdominal cramps and constipation.

Using the co-occurrence of brain and gut problems in ASD as their guide, researchers at the California Institute Technology (Caltech) are investigating a potentially transformative new therapy for autism and other neurodevelopmental disorders. FULL STORY

"Traditional research has studied autism as a genetic disorder and a disorder of the brain, but our work shows that gut bacteria may contribute to ASD-like symptoms in ways that were previously unappreciated," says Professor of Biology Sarkis K. Mazmanian. "Gut physiology appears to have effects on what are currently presumed to be brain functions."

FULL STORY
To leave comments, go to our Blog.
Access to USAAA Newsletter Archive 2005 - 2013


Kids with Behavior Problems: What Are Schools Required to Do?

by Pete Wright

boyRegarding the school's legal obligations, you should read the U. S. Supreme Court's decision in Honig v. Doe that was issued in 1988. The legal citation for Honig v. Doe is 484 U.S. 305. You will also find Honig v. Doe in our book, Wrightslaw: Special Education Law, 2nd Edition. The facts in Honig are similar to the facts you describe in your case.

Coming up with the correct solution may require additional testing to narrow down, diagnose, and set up a treatment plan. It is hard work, but this is what it takes to change a child, not just pass the child on to someone else so he becomes their problem.

You need to know what is driving this kid to act the way he does. Did he pop out of the womb as an angry vicious young man? Or, did his anger develop slowly over time? FULL STORY

FULL STORY
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Access to USAAA Newsletter Archive 2005 - 2013


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logoIn this issue:
Living with Asperger Syndrome

logoHealth News
Probiotic Therapy Alleviates Autism-like Behaviors in Mice

logoEducation News
Kids with Behavior Problems: What Are Schools Required to Do?


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Recapture the entire 2013 World Conference. Video downloads are available for all presentations including the exclusive "One on One" with Dr. Temple Grandin. The Self-Advocacy Panel - Challenges Throughout the Lifespan with Drs. Christopher Gauthier, Michael McManmon, Tim Page and college students Christine Motokane and BrookeLynne Sanders was the most compelling self-advocacy panel ever presented at a USAAA conference. Other areas covered were medical/biomedical, nutritional, educational, behavioral and developmental interventions and therapies, as well as personal experiences and challenges. Order now at www.usaaa.tv

Click here to view a five minute portion of the 90 minute Self-Advocacy Panel.


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