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US Autism & Asperger Association
January 1, 2013

Welcome to USAAA WeeklyNews, an email newsletter that addresses a range of topics on Autism, Asperger's Syndrome, and Pervasive Developmental Disorders.

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Hot topics from USAAA WeeklyNews in 2012

  • Autism definitions reducing services
  • Wave of individuals with autism entering adulthood
  • Employment issues
  • Education and IEPs
  • Metabolism and Digestion
  • Comorbidities and autism
  • Sensory processing and cognition
  • Advise when you receive a diagnosis
  • Biomarker for autism
  • Challenges and progress
  • Technology

To leave comments, go to our Blog.

Access to USAAA Newsletter Archive 2005 - 2013


Some articles from USAAA WeeklyNews you might have missed in 2012

  1. Accuracy Is Needed On Two Fronts
  2. Gastrointestinal Symptoms Altered Expression of Genes
  3. Autism Definitions Will Leave Too Many Out of Services
  4. 75% to lose their diagnosis
  5. Experts brace for wave of autistic adults
  6. Temple Grandin in an exclusive interview with USAAA
  7. Uncovering New Comorbidities That Complicate Autism
  8. Those words, "Your child has autism"
  9. Biomarker for autism may be on horizon
  10. Metabolic Imbalance
  11. The IEP Process Explained by an Attorney
  12. Challenges, progress part of daily life with autism
  13. iPad gives voice to kids with autism

To leave comments, go to our Blog.

Access to USAAA Newsletter Archive 2005 - 2013


Quotes from USAAA WeeklyNews articles in 2011

"I am compelled, as a physician who has for years spent thousands of hours treating countless persons for their Asperger Syndrome and related disorders, that this syndrome does not include violence as inclusionary nor exclusionary diagnostic criteria." [in reference to the early media reports that the perpetrator of the Connecticut tragedy had a sole diagnosis of Asperger Syndrome] - Phillip C. DeMio, MD, USAAA Chief Medical Officer and father of a child with autism

"When the CDC announced last year that two-thirds of Americans were labeled as "overweight" or "obese," no one called for a change in the definition of obesity so fewer Americans would be diagnosed. Instead, policymakers treated the problem as a public health concern." [in reference to the American Psychiatric Association eliminating Asperger Syndrome diagnosis and PDD-NOS in the new DSM-5 to be published in May, 2013- Ernst O. Vanbergeijk

"I hear from parents in the Baby Boomer generation who have kids in their 30s now. They come to me and say, 'I'm afraid to die, because who's going to care for my son or daughter?' "

"Sometimes you've got to do work that you really don't want to do. One time I blew up at a book signing. I reamed [this woman] up and down. She just didn't like her work. Well it's called work, excuse me." - Temple Grandin, PhD"

"We were told of are daughter's autism diagnosis at age six and our pediatrician said that she may never read, have friends, talk, or go to college. Our daughter is a student at a Community College and drives to school" - Theresa Wrangham, mother of a child with autism

"Thus, a systems approach to ASD using integrative genomics coupled with phenotyping of subjects has led to the discovery of novel candidate genes relevant to pathobiological processes involved in ASD as well as to the identification of potential diagnostic biomarkers at multiple levels: gene expression, microRNA, DNA methylation, and genetics." - Valerie Hu, PhD, George Washington University researcher and mother of a child with autism

"Confidence, however, isn't something that can be forced or faked." Aaron Likens

"As a practitioner, it's important for the parents to know that there is hope. Many of the parents are still told to institutionalize their child, that there is no hope for autism. Many people walking around here [at the US Autism & Asperger Association annual conference] are proof that’s not true." - Phillip C. DeMio, MD, USAAA Chief Medical Officer and father of a child with autism

"I wanted people to know who I was. I didn't want people to think I was dumb." Jack Lebersfeld, sixth grader diagnosed with Asperger Syndrome

"Will is accepted there. It doesn't matter if my son doesn't stop at first base and runs all the way to home after he hits the ball. If only the whole world understood these children this well." Laura Calverley, mother of a sone with autism

"I think it's opening a whole interesting way to be creative about giving people assistance," she said. "You can measure somebody's stress level and somebody can feed it back into their app and tell you if they're about to fall apart or have a meltdown." - Martha Herbert, MD, PhD, Keynote speaker at USAAA2010 and 2012 conferences

"This work makes an important point: many individuals with autism, (children and adults), have abnormal digestion and abnormal bugs in their GI tracts, and this is a big player in the way they manifest autistic symptoms."[ in reference to the study by Columbia and Harvard on findings that children with autism and gastrointestinal symptoms have altered expression of genes involved in digestion] - Phillip C. DeMio, MD, USAAA Chief Medical Officer and father of a child with autism

"Made for Good Purpose has a powerful set of tools based on Dr. Michael McManmon's personal experiences and insights as a self-advocate of Asperger Syndrome. Dr. McManmon defines 'The Donkey Rule', which will be embraced by every reader, as he guides everyone on a path towards achieving their fullest potential." - Lawrence P. Kaplan, PhD, Chairman of US Autism & Asperger Association, and author of Diagnosis Autism: Now What?

To leave comments, go to our Blog.

Access to USAAA Newsletter Archive 2005 - 2013


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In this issue:

Hot topics from USAAA WeeklyNews in 2012

Some articles from USAAA WeeklyNews you might have missed in 2012

Quotes from USAAA WeeklyNews articles in 2012


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