Welcome to USAAA WeeklyNews, an email newsletter that addresses a range of topics on Autism, Asperger's Syndrome, and Pervasive Developmental Disorders.
Advice for a parent who hears those words, "Your child has autism"
"What advice can you give to a parent who for the first time hears those words, “your child has autism".
Dr. Phillip C. DeMio was interviewed at the 2010 US Autism & Asperger Association World conference. Click on the image to listen to the interview.
The following is an excerpt from the USAAA 2010 Conference interview:
Jama Lambert: What advice can you give to a parent who for the first time hears those words, “your child has autism”.
Dr. DeMio: “Being a practitioner, I never forget when a person comes to me and their child is newly diagnosed and you get these little toddlers who are supposed to be the little rising star of the family. It’s devastating. Your hopes and dreams seem shattered. As a practitioner, it’s important for the parents to know that there is hope. They are often told that their child is not going to do well, that they are not going to have a good life.
Many of the parents are still told to institutionalize their child, that there is no hope for autism, they will never get better, never function, and a bunch of "nevers", as Theresa Wrangham puts it (they will never talk, never walk, never get out of diapers, never live on their own, never get a job or never go to college). Many people walking around here [at the US Autism & Asperger Association annual conference] are proof that’s not true.” FULL INTERVIEW
"As a practitioner, it’s important for the parents to know that there is hope. Many of the parents are still told to institutionalize their child, that there is no hope for autism. Many people walking around here [at the US Autism & Asperger Association annual conference] are proof that’s not true."
Dr. DeMio will be introducing the World Premiere presentation, "Emergencies, Surgeries, and Anesthesia: Inside the Hospital From ER to Overnight Stays", at the USAAA 2012 World Conference in Denver, Colorado September 6-9. He will also be presenting, "Beneficial Interventions and Critical Health Challenges During the Lifespan", and he will be participating on three panels: "Fathers of Children with ASD", "Multi-Disciplinary Approach to Autism and Asperger Interventions in the Community", and "The Doctors and Researchers Q&A Panel Discussion".
Access to USAAA Newsletter Archive 2005 - 2012
New Discoveries in the Underlying Pathobiology of Autism
There are multiple factors giving rise to autism which require better integration of the different types of whole genome studies in order to develop a more comprehensive understanding of the underlying pathobiology of autism. This comprehensive level of understanding is critical to the development of novel treatments that are based on correcting specific deficiencies in different individuals with autism.
Dr. Valerie Hu presents, "New Discoveries in the Underlying Pathobiology of Autism", at the USAAA 2012 World Conference in Denver, Colorado September 6-9. Conference Schedule. Dr. Hu also stresses the need to focus studies on subgroups of individuals with similar clinical and behavioral profiles in her conference presentation.
"There are different gene signatures that are associated with different subgroups of individuals with autism, such as those with severe language impairment, with Asperger's Syndrome, and with savant skills."
Conference attendees will learn about: A biomarker screen and biology-based therapeutics based on gene expression; That testosterone and estrogen have opposite effects on the gene RORA; why RORA levels run low, which affects every gene that RORA is supposed to turn on; RORA is also believed to be help maintain the body's daily circadian rhythm, and people with autism frequently experience sleep disturbances; the RORA gene has been shown to protect neurons against the effects of stress and inflammation - both of which are elevated in autism; estrogen raises RORA levels in cells.
Dr. Valerie Hu is a Professor of Biochemistry and Molecular Biology at The George Washington University Medical Center as well as a mother of a son with autism. She redirected her research focus towards autism in 2005 and has since published 10 papers on the genes and biological pathways associated with autism. Dr. Hu received her PhD in Chemistry from California Institute of Technology and did her postdoctoral research in Membrane Biochemistry and Immunology at UCLA.
Access to USAAA Newsletter Archive 2005 - 2012
Online Registration Ends Tuesday, September 4 for the USAAA 2012 Conference - Register Now!
Parents, Students, Family Members and Professionals Come Together Sept. 6-9 for the USAAA 2012 World Conference in Denver. All Registrants Can Attend ANY Session.
VIEW ALL CONFERENCE PACKAGES
VIEW THE CONFERENCE SCHEDULE
VIEW THE BIOS OF THE SPEAKERS
CEU AND CME CREDITS