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US Autism & Asperger Association, Inc. November 4 , 2007

Welcome to USAAA Weekly News, an email newsletter that addresses a range of topics on Autism Spectrum Disorders and Asperger's Syndrome.


Theresa K. Wrangham Appointed USAAA Director of Educational Development and Conference Liaison

US Autism and Asperger Association is pleased to announce the appointment of Theresa K. Wrangham as Director of Educational Development and Conference Liaison. Theresa assumes her duties immediately and will represent USAAA at the National Autism Association conference this week in Atlanta.

Theresa Wrangham is the mother of a 17 year old affected daughter and brings to the fore an experienced parent’s perspective on raising a healthy child affected by ASD and the benefits of advocacy outside family needs. Ms. Wrangham is the Past President and Co-Founder of Autism Society of Boulder County, which was the first ASA chapter to bring a biomedical and behavioral conference to Colorado’s autism community. Ms. Wrangham also spearheaded Colorado’s legislative efforts to ban mercury containing vaccines in favor of vaccines meeting federal safety guidelines. She currently sits on USAAA’s Advisory Panel, is a Board Member and the Vice-Chair of Governmental Affairs for SafeMinds and is a retired AMTA massage therapist. Ms. Wrangham has been featured in several Colorado publications, radio interviews and local news interviews.

Ms. Wrangham will be presenting in Orlando, Florida during the Autism Orlando Biennial Conference 2008, February 14-17, hosted by USAAA and Autism Today. This conference marks Ms. Wrangham’s speaking debut outside Colorado.

"Theresa is a spark plug for USAAA and the entire autism/Asperger community," said USAAA Executive Director L.P. Kaplan. "She is energetic beyond capacity. She is a wonderful mentor for many parents, especially to those whose children have recently been diagnosed. We are honored to have Theresa enter into a new role with USAAA as she expands our programs into new areas to benefit all who are associated with the autism and Asperger's Syndrome communities."

To contact Ms. Wrangham by email, please click here.


Autism, Stem Cells and What the World URGENTLY Needs to Know: The Body Ecology Perspective
Commentary by Donna Gates for BodyEcology.com

Dr. Fabio Solano has used CD34+ stem cells from cord blood and mesenchymal stem cells (MSC) as a successful autism treatment.

As you know, I created the Body Ecology Diet to heal systemic fungal, viral and bacterial infections. It has become clear over time that the Body Ecology program provides healing for many different kinds of physical problems. In fact, most of the health problems we suffer from today are fungal (or yeast) based...even cancer. This is certainly true for children who are suffering from an infection we now call autism. Spreading the word that autism is both treatable and preventable is a major goal.

Stem cell therapy appears to be a safe way to treat autism...it is a major intervention, and children with autism need to be healthy from the inside out.

Doctors and scientists are not exactly sure why children develop autism, but the statistics are frightening: roughly 1 out of every 150 children born is diagnosed with autism.1 Healing autism and other childhood development disorders has become a passion of mine. And while I understand the incredible power of nutrition and lifestyle support, I also seek therapies that will create the major shift parents of children with autism are seeking.

As Dr. Smith says, "Stem cell therapy is the dessert, not the main course," and nutrition and lifestyle should support optimal health.

Stem cell therapy is a welcome discovery in our fight to greatly improve or eliminate autism from the lives of our children. For this reason, I have been collaborating with Dr. Leonard Smith, who along with six other colleagues authored a research paper called Stem Cell Therapy for Autism. Dr. Smith and I are excited about how stem cell therapy, the Body Ecology program and some simple lifestyle changes can heal children with autism. To learn more about the research that Dr. Leonard Smith and his colleagues performed, go to the Journal of Translational Medicine to read Stem Cell Therapy for Autism.

Click here for entire story.

For further information, please contact the author, NOT USAAA for additional information.


A Potential New Treatment for Autism's Most Difficult Symptom - TSO
Recently presented at the Mount Sinai School of Medicine and the Seaver and New York Autism Center of Excellence.
Commentary by Stewart Johnson, autismtso.com

My name is Stewart Johnson and I am the father of a 16 year-old son with autism. My professional life is unrelated to medicine; I am not a doctor or scientist. Despite my lack of formal training in the topic I have spent 13 years immersing myself in autism research. My goal has always been to find ways to improve my son’s life and our life as a family. Along the way I have tried most available therapies, including psychopharmacology, Applied Behavior Analysis, dance and movement therapy, music therapy, audio integration training, various diets and supplement approaches, etc. Some of these helped in certain ways, some did nothing, and some made things worse. Nothing ever addressed my son’s most severe symptoms, except temporarily. I was at the absolute end of my rope when I connected the dots and uncovered TSO.

Helminthic therapy, developed by scientists at the University of Iowa, is a new and purely biological approach to treat autoimmune diseases such as Crohn`s disease and Ulcerative colitis.

On Sunday 10/28/07 I presented my hypothesis and the results with my son at the annual autism research conference sponsored by Mount Sinai School of Medicine and the Seaver and New York Autism Center of Excellence. There was a huge turnout for the conference; by lunchtime the auditorium was full. Given the tremendous audience response to my presentation it is clear that there is interest in this topic.

My hypothesis is that the symptoms of autism that I describe on my web site are an aberrant immune response. In essence I am saying that these symptoms are autoimmune in nature, and since Crohn’s and UC are both autoimmune disorders that are being effectively treated by TSO, I thought that TSO might also restore normal immune function in autism and thereby alleviate some of these symptoms.

Click here for more information.


About TSO

TSO is known as Trichuris suis ova or better known as the pig whipworm. Trichuris is a genera of whipworms that infect many different mammals but are species specific in their ability to develop into a complete infection. Man has been reported to be infected with the pig whipworm, but not to develop a complete infection. (Summers, R.W., et. al., Gastroenterology. 128:825-832.).

Ulcerative colitis is most common in Western industrialized countries. Inflammatory bowel disease is uncommon in developing countries where helminths are frequent.

The United States Department of Agriculture conducted a randomized controlled trial of Trichuris Suis Therapy for Active Ulcerative Colitis in 2004. (Summers, R.W., Elliott, D.E., Urban, J.F. Jr., Thompson, R.A., Weinstock, J.V. 2005. Trichuris suis therapy for active ulcerative colitis: A randomized controlled trial. Gastroenterology. 128:825-832.).

The pig whipworm, Trichuris suis, appears to be asymptomatic in man and represents a naturally attenuated infection that cannot reproduce. This provided an opportunity to test the hypothesis that exposure to a worm would reduce the severity of IBD.

People naturally colonized with helminths exhibit altered immunological responses to various antigens.

Conclusions: In patients with active UC, T. suis ova-therapy was safe and more effective than placebo. This finding also supports the premise that natural exposure to helminths like T. suis affords protection from immunological diseases like UC.

The following are additional links to this article:
USDA Government Research
PubMed, University of Iowa Study
Allergizer.com


Introducing USAAA Expert's Corner

USAAA Expert's Corner is a new section of USAAA WeeklyNews, where we feature information from a leading autism expert.

This week's expert is: Valerie Herskowitz, MA, CCC-SLP

Computer-Based Intervention

Individuals with autism- children, adolescents, and adults can benefit from utilizing computer-based intervention. Research has indicated that the gains from utilizing this type of therapy often exceeds behaviorally based teaching. Programs are available that teach speech, language, math, reading, social skills, auditory processing, work skills, life skills, etc. These are not the typical computer software that you would purchase at a store, but specialized programs designed for the special needs population.

Many children and adults with Autism will frequently tolerate one-on-one instruction via a computer when they won't engage in a human tutorial dyad. Language skills of individuals with Autism have been noted to improve through computer-assisted instruction when all other traditional methodologies have failed.

Children with autism were more attentive, more motivated, and learned more vocabulary in the computer than in the behavioral program.

A study conducted at the Department of Psychology, Georgetown University, Washington, DC, examined the impact of computers on the vocabulary acquisition of young children with autism. Children's attention, motivation, and learning of words was compared in a behavioral program and an educational software program. The educational software program was designed to parallel the behavioral program, but it added perceptually salient qualities such as interesting sounds and object movement.

These are not the typical computer software that you would purchase at a store.

Conclusions: Children with autism were more attentive, more motivated, and learned more vocabulary in the computer than in the behavioral program. Implications are considered for the development of computer software to teach vocabulary to children who have autism.

To purchase PDF files of Ms. Herskowitz's papers, "Computer-Based Intervention for Individuals With Autism," and " 3:00pm - 4:00pm Balancing It All - Enriching the Lives of Parents Who Have Children With Autism," that were published in the Conference Proceedings Manual from the USAAA 2007 annual conference, click here. To purchase DVDs, click here. Proceeds go toward USAAA's scholarship fund which allow individuals to attend USAAA conferences.


A family's difficult life with autism
by Barbara Fischkin| Author and journalist Barbara Fischkin is writing a book about her son Daniel growing up with autism. November 4, 2007
The American Academy of Pediatrics treatment report promotes outdated theories and misleading information.

Daniel, our first child, was 2 years old when he was examined by a kindly pediatrician at Schneider Children's Hospital in New Hyde Park and diagnosed as perfect. "Don't worry," the doctor said. "He'll be great." That was in the late 1980s, and I remember the day so well because the prognosis was so wrong. More than a year later, when Daniel was 3 1/2, he slowly stopped speaking, lost his toilet training and would not play with any of his toys. Our Long Island pediatrician didn't have a clue. All he had was a word based on a report from a neurologist. "Autism," he said. "But I don't think it will be that bad." Turns out it was.

Today many young parents still don't get much more help from primary care pediatricians than we did.

A lot of troubled water has flowed under our particular medical bridge since then. Autism was recently called the "fastest-evolving disorder in all of medical science" by the chairman of Columbia University's department of psychiatry. In our family we used to feel so alone. Now, even worse, we run into autism everywhere.

Click here for entire story.


USAAA Parent's Forum

USAAA Parent's Forum is a new section of USAAA WeeklyNews, where you send us your story about your experience with autism and Asperger's Syndrome on a specific topic each week. Whether you're a parent, grandparent, caregiver, or have any experience with autism spectrum disorders, your stories help provide insight into the world of autism.

This week's topic is: "Where are the best schools in the country? If your child is attending a school for children with autism and you feel it is exceptional in all methods of intervention, please let us know about it and tell us why it has benefited your child's education. "

Please send us your story in 500 words or less. Include your full name, email address, and in the subject line include this week's topic. Submissions are condensed and edited. Because of the volume of mail received, not all submissions are published. Information other than your name are kept confidential.

Click here to submit your story.


Free LIVE Webcast: NOVEMBER 7 - Dr Nancy O'Hara, M.D. "What Integrative Medicine Can Offer Your Child." Click here for more information.

In This Issue :
›› Theresa K. Wrangham Appointed USAAA Director of Educational Development and Conference Liaison
›› Autism, Stem Cells and What the World URGENTLY Needs to Know: The Body Ecology Perspective
›› A Potential New Treatment for Autism's Most Difficult Symptom - TSO

››
About TSO
›› USAAA Expert's Corner, Computer-Based Intervention, by Valerie Herskowitz, MA, CCC-SLP
›› A family's difficult life with autism
by Barbara Fischkin

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Inbox Readers' Comments are opinions from our subscribers. USAAA is not responsible for the content, accuracy or opinions expressed in this section.

Send in your comments to INBOX.

Comments from readers:

Dear Dr. Kaplan: Thanks for all your dedicated work for the past 12 years. I cannot thank you enough for all the accomplishments you have done. Be reassured, I will continue to get my voice heard every single day and educate, give awareness on autism until we find a cure. I support you all the way. Keep up the great work. —Evelyne

At 12 months, my daughter was silent and apraxic, did not point or wave, and had rapid head growth. We gave her some ProEFA fish oil and within three days she said her first word and made her first point. At 18 months, she was spinning, flapping and lining up toys. We started biomed and over the next two and a half years our big wows were GFCFSF diet, methyl-B12, Valtrex, and HBOT. Today, she is completely recovered --neurotypical and gifted. The biomed approach absolutely saved our daughter and returned her to us. —Dawn

"Keith is 39." At 18 months when he lost words he had gained as a baby, gave no eye contact and tantrumed constantly -- we consulted our well known and well respected doctor in Richmond, VA. He suggested Keith might be spoiled. He thought Keith wasn't talking because his sister (2 yrs. older) talked for him. After much insistence from young parents in our 20s then, he sent us to a child pyschologist. Later we found out the pyschologist had suspected autism but "did not wish to alarm the parents." I would urge all parents to persist and get the testing they need for their child. Our son was seen at Johns Hopkins at 3 yrs. and in a program by 4. He is a beautiful and now under control man who is still very severely handicapped. I have written a fictional book - Eyes Like My Own, with a character who has autism. —Sheila Talley

I am a mother of 5 beautiful children. My youngest two boys (they are 1 1/2 years apart) were diagnosed the same day with autism at ages 2 and 3. I knew something was not right, yet this diagnosis of PDD-NOS and severe autism hit me like a sledge hammer to my chest. We were given no hope and told that my youngest would most likely become too unruly and have to be institutionalized by school age. I cried for about a month then delved into research into what this autism was all about. I soon began to attend conferences and suddenly heard the word recovery. Wow, was it really possible. I began the GFCF diet the first day I heard of it and within a week, my 3 year old was sleeping through the night and no longer exhibiting meltdowns. His progress was steady and within 3 years was totally void of any autistic behaviors. What helped him most was the yeast treatment, diet and supplements along with ABA. My youngest, now 7, who was very severe has done GFCF, supplements, meds, chelation, HBOT, IVIG and I am very happy to say is in regular education with an aid, speaking and doing very well. My belief is that he will be recovered in the next 3 years. My belief is that these children suffer from medical problems that when addressed and corrected they can do fine. Never lose hope. Never- no matter how old you child is!!! I am a medical professional and took my experience to help found the Autism Recovery Center) in Franklin, Wisconsin. We help many children who suffer from medical problems that cause neurological symptoms called autism. —Jane



   

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The content on the USAAA web site, newsletters or other electronic information sent via email is presented is provided for informational purposes only. The content is not intended in any way to be a substitute for professional medical advice. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. USAAA is a distributor (and not a publisher) of content supplied by third parties and Subscribers. Accordingly, USAAA has no more editorial control over such content than does a public library, bookstore, or newsstand. Any opinions, advice, statements, services, offers, or other information or content expressed or made available by third parties, including information providers, Subscribers or any other user of USAAA web site, newsletters or electronic information, are those of the respective author(s) or distributor(s) and not of USAAA. Neither USAAA nor any third-party provider of information guarantees the accuracy, completeness, or usefulness of any content, nor its merchantability or fitness for any particular purpose. (Refer to the Disclaimer link located at the bottom of the newsletter for more information).

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